Our Mission
Krabbe Connect works to improve care and accelerate research for people affected by Krabbe disease by connecting patients, caregivers, clinicians, and researchers. The organization focuses on patient-centered education, support programs, and building research networks to advance treatments and newborn screening.
How Your Donations Help
- $25 can mail 1 Welcome Package to a Newly Diagnosed Family
- $50 purchases 1 comfort item not covered by insurance
- $100 buys 1 positioning device to help prevent bed sores
- $500 helps ship 1 gently used stander or wheelchair to another family due to insurance complications
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Our Impact
Patients and families living with and/or caring for someone with Krabbe disease face enormous challenges. Out-of-pocket medical expenses, large deductibles, unpaid time away from work, supportive therapeutic interventions not covered by insurance, medical equipment, and monthly over-the-counter supplies are just a few of the many struggles that Krabbe families face daily. Through KrabbeConnect’s Patient Assistance Program, we help ease some of the medical/financial burden so families can focus their time and energy on taking care of their loved one impacted by Krabbe disease.