Our Mission
Myhre Syndrome Foundation is a patient advocacy organization dedicated to providing hope and improving the lives of those impacted by Myhre syndrome. We foster collaboration among all relevant stakeholders to build a strong, global community in order to advance research, as well as support, educate and advocate for those impacted by Myhre syndrome.
How Your Donations Help
- $25 could fund 1 Myhre family to attend the next Myhre Syndrome Foundation Virtual Conference
- $50 can fund 1 leaflet to be translated
Our Impact
M
Myhre Syndrome Foundation
posted an impact story
about 3 years ago
about 3 years ago
Funding has helped us create the first ever Myhre Syndrome Patient and Family Handbook. This document is the first of its kind, including further details on the genetic diagnosis, guidance on who to see and when, what support is available, templates and explanations on medical and radiology terms. The manual is available in English, Spanish, French, German and Italian.
Causes We Support
Countries We Serve
United Nations Sustainable Development Goals
