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NORD represents 1 in 10 Americans who have rare diseases with programs of advocacy, education, research and patients services. It serves as the voice of the rare disease community on important issues of public policy. It also provides information on rare diseases in understandable language for patients and their families, with referrals to support groups and other helpful resources. It encourages research on new diagnostics and treatments and administers patients assistance programs. NORD mentors rare disease support groups so that they can more effectively help their members. It serves as the point of connection between the patient community and key government agencies, such as the National Institutes of Health (NIH) and Food and Drug Administration (FDA). Nearly 150 patient organizations are members of NORD and look to NORD for guidance, mentoring and leadership.

THE HOSPICE OF DAYTON, INC. IS COMMITTED TO MAKING QUALITY HOSPICE CARE AVAILABLE AND ACCESSIBLE TO TERMINALLY ILL PERSONS AND THEIR FAMILIES, REGARDLESS OF ABILITY TO PAY, AND IN A MANNER CONSISTENT WITH THE HIGHEST HOSPICE STANDARDS. OUR COMMITMENT TO THE HOSPICE PHILOSOPHY OF CARE INCLUDES A COMPASSIONATE STAFF PLEDGED TO CONTINUOUSLY IMPROVE AND ENHANCE THE CARE WE PROVIDE, RESPECT THE PATIENTS' CHOICES OF CARE, RESPOND TO CHANGING COMMUNITY NEEDS, AND SERVE AS A RESOURCE TO OTHERS FOR IMPROVING THE AVAILABILITY OF QUALITY HOSPICE CARE.

The mission of the Pulmonary Fibrosis Foundation is to accelerate the development of new treatments and ultimately a cure for pulmonary fibrosis. Until this goal is achieved, the PFF is committed to advancing improved care of patients with PF and providing unequaled support and education resources for patients, caregivers, family members, and health care providers. In pursuit of our mission, the PFF is guided by the following core values: Patient-centered Urgency Innovation Collaboration Inclusiveness Evidence-based Trusted information Compassion

UMDF's mission is to promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and provide support to affected individuals and families.

Parent Project Muscular Dystrophy fights to end Duchenne. We accelerate research, raise our voices to impact policy, demand optimal care for every single family, and strive to ensure access to approved therapies.

Smile Train is an international children’s charity with a sustainable approach to a single, solvable problem: cleft lip and palate. Millions of children in developing countries with unrepaired clefts live in shame, but more importantly, have difficulty eating, breathing and speaking. Cleft repair surgery is simple, and the transformation is immediate. Our sustainable model provides training and funding to empower local doctors in 85+ developing countries to provide 100%-free cleft repair surgery in their communities. We use the “teach a man to fish” model focusing on training local doctors to perform cleft repairs in their communities. Those doctors then go on to train other doctors creating a long-term, sustainable system. Patients see their smile for the first time, parents cry tears of joy, lives and communities are changed forever. As a result of our efficiency and with the support of our donors and partners around the world, Smile Train has transformed the lives of more than one million children by giving them the power of a smile -- that's roughly 350 surgeries a day and 128,000+ every year.  

Since 1970, the OI Foundation has doubled funding for research every five years, for a total investment of more than $3.3 million. Funding is available for postdoctoral fellowships to encourage new investigators to begin a career in OI research, and seed grants for preliminary research. All applications are reviewed by the Foundation's Scientific Review Committee, which includes many preeminent OI researchers and clinicians. Funding also supports the OI Registry and the Linked Clinical Research Centers. The potential for results in OI research is growing, with recent advances in gene therapy, a new diagnostic test, and drug therapies under study.

TO PROVIDE A HOME AND AN EXTENDED FAMILY TO PERSONS WITH TERMINAL ILLNESSES SO THEY CAN DIE WITH DIGNITY SURROUNDED BY THE UNCONDITIONAL LOVE OF GOD. WE WILL USE OUR LIVED EXPERIENCE AS A RESOURCE FOR OTHERS.

Angela Hospice is dedicated to provide comprehensive, compassionate, and Christ-like care to adults and children in the communities we serve.

The mission of The Foundation is to empower lives for a brighter future by facilitating projects and partnerships that enhance the welfare, education, health, and artistic and athletic abilities of individuals with Down syndrome.  The vision of The Foundation is to create an environment where people with Down syndrome are included in every facet of the community.  We believe that every person has something to offer regardless of their abilities.  It is our hope to enable people with Down syndrome to become integrated into all areas of their lives beginning with school, through college and meaningful employment.

The Myotonic Dystrophy Foundation (MDF) is a non-profit organization founded in 2007 by families living with myotonic dystrophy (DM). Our mission, Care and a Cure, is to enhance the quality of life of people living with mytonic dystrophy, and to advance research efforts focused on finding treatments and a cure for this disease.

For more than 20 years, the Clinton Foundation has transformed philanthropy — running programs that develop leaders and accelerate solutions to the world’s most pressing challenges. Under the leadership of President Clinton, Secretary Clinton, and Chelsea Clinton, our unique approach prioritizes solutions over ideology — bringing people together in the spirit of collaboration and pragmatic problem-solving for a brighter future. Programs founded by the Clinton Foundation since its inception reflect our shared commitment to “putting people first” — the practice of focusing on how a proposed policy, program, or partnership can directly affect a person’s life and make a lasting impact.