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The Kentucky Hemophilia Foundation supports people with hemophilia and related inherited bleeding disorders across Kentucky by providing education, advocacy, and family support services while promoting research toward a cure. Its programs are offered free to participants and are funded by grants, donations, and fundraising events.
The Wescoe Foundation for Pulmonary Fibrosis is a 501(c)3 non-profit organization that provides education, support, resources and advocacy for patients living with Idiopathic Pulmonary Fibrosis (IPF) and their carepartners in order to sustain the highest possible quality of life.
United Cerebral Palsy (UCP) educates, advocates and, provides support services to ensure a life without limits for people with a wide range of disabilities. UCP and its nearly 80 affiliates advance the independence, productivity and full citizenship of people with a spectrum of disabilities by providing services and support to more than 176,000 children and adults every day-one person at a time, one family at a time. We work to enact system change-to revolutionize care, raise standards of living and create opportunities-impacting the lives of millions living with disabilities. UCP was founded in 1949 by parents of children with cerebral palsy. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, we will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 60 years, and beyond.
NOTRE DAME HEALTH CARE CENTER (NDHCC), ROOTED IN THE HERITAGE OF SAINT JULIE BILLIART AND SPONSORED BY THE SISTERS OF NOTRE DAME DE NAMUR, IS DEDICATED TO THE HEALING MINISTRY PROCLAIMED IN THE GOSPEL AND BY THE CATHOLIC CHURCH.
The Progeria Research Foundation's (PRF) mission is to find treatments and the cure for Progeria and its aging-related disorders, including heart disease. Progeria is a fatal, 'rapid aging' disease that afflicts children, who die of heart disease at an average age of 14 years. PRF was founded in 1999 in response to the complete lack of resources and research on Progeria, and is the only organization in the world solely dedicated to discovering treatments and the cure for this devastating condition.
WHITNEY CENTER'S MISSION, EXCELLENCE IN SENIOR LIVING, IS GROUNDED IN THE PRINCIPAL THAT ALL ELDERS, REGARDLESS OF PHYSICAL OR COGNITIVE LIMITATIONS, HAVE THE RIGHT TO ENGAGE IN LIFE AND SEEK FULFILLMENT. (SEE SCHEDULE O)OUR IDEALS OF SELF-DETERMINATION, LIFELONG LEARNING AND CONTINUAL GROWTH ARE UNBOUNDED BY AGE AND EMBRACED BY A PERSON-CENTERED PHILOSOPHY.
NORD represents 1 in 10 Americans who have rare diseases with programs of advocacy, education, research and patients services. It serves as the voice of the rare disease community on important issues of public policy. It also provides information on rare diseases in understandable language for patients and their families, with referrals to support groups and other helpful resources. It encourages research on new diagnostics and treatments and administers patients assistance programs. NORD mentors rare disease support groups so that they can more effectively help their members. It serves as the point of connection between the patient community and key government agencies, such as the National Institutes of Health (NIH) and Food and Drug Administration (FDA). Nearly 150 patient organizations are members of NORD and look to NORD for guidance, mentoring and leadership.
To raise money to fight cancer. Donations are made to research at both Mass General and Dana Farber
Our mission is to educate the public and medical community about preventing and reversing multiple causes of memory loss, dementia, and Alzheimer’s Disease, and to advocate for new testing and treatment protocols. To accomplish our mission, we use live presentations, social and multimedia outreach, online resources, and a collaborative network of like-minded individuals and organizations to spread the good news.
The Ehlers-Danlos Society is a global community of patients, caregivers, health care professionals, and supporters, dedicated to saving and improving the lives of those affected by the Ehlers-Danlos syndromes and related disorders. We are a nonprofit organization, established in 1985 as the Ehlers-Danlos National Foundation by Nancy Hanna Rogowski (1957–1995) Our Vision We support collaborative research and education initiatives, awareness campaigns, advocacy, community-building, and care for the EDS and HSD (Hypermobile Spectrum Disorders) population. Our goals are world-wide awareness—and a better quality of life for all who suffer from these conditions. Research is at the center of what we do, so that one day we will have a cure. Our strength begins with hope. Our Mission Collaborative research bringing together medical professionals from all over the world to work on groundbreaking management and care. Organizing medical and scientific symposiums to examine the latest research and update the diagnostic criteria and guidelines for management and care. Bringing together and uniting our community, providing annual conferences globally to distribute information and create opportunities to interact. Producing reliable up-to-date medical literature though our esteemed medical and scientific board and International Consortium on EDS and Related Disorders. Guiding both patients and medical professionals to the most up to date information, resources, support, and education. Uniting support groups and charities from around the world, providing resources and information where needed. Working with our Affiliates on local issues and projects that affect our communities around the globe. One person fighting is a start, but many together build an army. Giving HOPE to all those whose lives are affected by Ehlers-Danlos syndromes.
The organization (operating publicly as Jenkins Youth & Family Village) preserves the legacy of Rev. Daniel Joseph Jenkins by operating residential and support services for children and families. It provides a nurturing environment and community programs aimed at helping youth and families thrive and build more stable futures.
Called by God, Our Lady of Peace gently comforts and cares for those most in need near the end of their lives, wherever they call home, regardless of means.