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Our mission is to find a effective treatments and ultimately a cure for fragile X syndrome, the most common inherited cause of autism. We directly fund research grants and fellowships at top universities around the world. FRAXA was founded in 1994 by three parents of children with fragile X. Fragile X Syndrome is the most common inherited cause of autism and intellectual disabilities. It affects 1 in 4000 boys and 1 in 6000 girls worldwide, and one in 260 women and 1 in 800 men are carriers. Treatments for fragile X are likely to help people affected by related disorders including autism, Alzheimers, and many other brain disorders.
Brain Support Network (BSN) is a non-profit, charitable organization dedicated to three missions: 1) Providing information and support for anyone living with an atypical parkinsonism disorder (Progressive supranuclear palsy, Dementia with Lewy bodies, Multiple System Atrophy or Corticobasal degeneration) anywhere in the world; 2) Providing a support for care partners of those living with an atypical parkinsonism disorder in the San Francisco Bay Area; 3) Enabling families living anywhere in the US to donate the brain of anyone with any neurological condition (or healthy controls) to confirm the diagnosis and to further neurological research into causes, treatment options and cures.
Every Mother Counts is a non-profit organization dedicated to making pregnancy and childbirth safe for every mother. They inform, engage, and mobilize new audiences to take actions and raise funds that support maternal health programs around the world.
Hospice of Michigan's mission is to ensure quality of life and a comfortable, peaceful death for all patients receiving our care, and provide support for their loved ones. We will serve everyone in our communities who needs and seeks our care and strive to improve the state of end-of-life care.
In the fight for a DIPG/DMG cure, we help patients and families by funding game-changing research and providing navigation throughout their journey.
Angela Hospice is dedicated to provide comprehensive, compassionate, and Christ-like care to adults and children in the communities we serve.
Bringing comfort and dignity as life nears its end.
UMDF's mission is to promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and provide support to affected individuals and families.
Guiding Eyes for the Blind--Provides guide dogs for the blind
Our mission is to advance the awareness and treatment of Angelman Syndrome through education and information, research, advocacy, and support for individuals with Angelman Syndrome, their families, and other concerned parties.
The Epilepsy Foundation is the national organization that works for people affected by seizures through research, education, advocacy and service. We are an organization of volunteers committed to the prevention and cure of epilepsy and a positive quality of life for everyone who lives with seizure disorders. Our current strategic goals include broadening and strengthening of research, providing individuals and families with easy access to reliable information, and assuring access to appropriate medical care for those affected by seizures.
To improve the lives of persons affected by myositis, fund innovative research and increase myositis awareness and advocacy.