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The National Scleroderma Foundation is a 501(c)(3) nonprofit organization founded in 1998 to advance medical research, promote disease awareness, and provide support and education to people with scleroderma, their families and support networks. Supported by a network of thousands of individuals across the United States, the Foundation helps those living with scleroderma by providing support and education at the same time that it funds peer-reviewed scleroderma research. Since its founding, the Foundation has committed over $30 Million to discover the cause, understand the mechanism, and overcome scleroderma forever. The Foundation is home to the National Scleroderma Conference—the only educational program of its kind and scope in the U.S.—which provides access to leading scleroderma experts and up-to-date information while serving as the central meeting ground for the scleroderma community. In addition, the Foundation's Stepping Out to Cure Scleroderma walks are the country's premier awareness and fundraising events which are organized by the Foundation’s local chapters and take place throughout the year at multiple locations and virtually across the country. The Foundation is led by a dedicated, volunteer Board of Directors that exercises its fiduciary responsibilities, an extraordinary, volunteer Medical & Scientific Advisory Board comprised of world-renowned physicians and scientists, and an exemplary professional staff committed to advancing its mission through the organization's cultural values of care, connection, diversity, integrity, meaningful work, and trust.

Dementia Society raises awareness and education across the United States and Canada for the syndrome known as Dementia (including Alzheimer's disease, Vascular Dementia, Lewy body, FTD, and other causes). We connect families to local resources; create meaningful therapeutic moments for those living with Dementia and their caregivers through non-medical programs that include music, movement, and the arts. We recognize and invest in outstanding Dementia care, innovation, and research.

The Epilepsy Foundation is the national organization that works for people affected by seizures through research, education, advocacy and service. We are an organization of volunteers committed to the prevention and cure of epilepsy and a positive quality of life for everyone who lives with seizure disorders. Our current strategic goals include broadening and strengthening of research, providing individuals and families with easy access to reliable information, and assuring access to appropriate medical care for those affected by seizures.

Mission: To facilitate global collaboration and fund world-class research, medical education, and treatment trials, that make a positive impact on the lives of people with ME/CFS, Long COVID and related diseases. Vision: Significantly improve patient outcomes while advancing a cure. Goals: Our primary goals are to: frame clear disease mechanisms and models; find effective treatments and diagnostic markers; increase accurate diagnoses; and ensure access to quality care.

The mission of the Pulmonary Fibrosis Foundation is to accelerate the development of new treatments and ultimately a cure for pulmonary fibrosis. Until this goal is achieved, the PFF is committed to advancing improved care of patients with PF and providing unequaled support and education resources for patients, caregivers, family members, and health care providers. In pursuit of our mission, the PFF is guided by the following core values: Patient-centered Urgency Innovation Collaboration Inclusiveness Evidence-based Trusted information Compassion

The mission of The Foundation is to empower lives for a brighter future by facilitating projects and partnerships that enhance the welfare, education, health, and artistic and athletic abilities of individuals with Down syndrome.  The vision of The Foundation is to create an environment where people with Down syndrome are included in every facet of the community.  We believe that every person has something to offer regardless of their abilities.  It is our hope to enable people with Down syndrome to become integrated into all areas of their lives beginning with school, through college and meaningful employment.

The Marfan Foundation creates a brighter future for everyone affected by Marfan syndrome and related disorders. • We persue the most innovative research and make sure that it receives proper funding. • We create an informed public and educated patient community to increase early diagnosis and ensure life-saving treatment. • We provide relentless support to families, caregivers, and healthcare providers. We will not rest until we've achieved victory - a world in which everyone with Marfan syndrome or a related disorder receives a proper diagnosis, gets the necessary treatment, and lives a long and full life.

With the success of the Salk vaccine in the mid 1950s, the March of Dimes turned its focus on birth defects, low birth weight and infant death. Over the past 75 years, March of Dimes' cutting edge research and innovative programs have saved millions of babies from death or disability. We are committed to educating medical professionals and the public, supporting research, providing comfort and support to families in NICUs, and advocating for moms and babies. All mothers and babies deserve access to the tools they need for the success of their families, so that the future is brighter for all. Every Mom. Every Baby.

Paralyzed Veterans of America (PVA), a congressionally chartered veterans service organization founded in 1946, has developed a unique expertise on a wide variety of issues involving the special needs of our members veterans of the armed forces who have experienced spinal cord injury or dysfunction. PVA will use that expertise to be the leading advocate for: - Quality health care for our members - Research and education addressing spinal cord injury and dysfunction - Benefits available as a result of our members military service - Civil rights and opportunities which maximize the independence of our members and all people with disabilities. For more than 60 years, PVA has fought for our veterans who answered the call when our nation asked for their service . . . and in return, they have given up their freedoms to protect ours.

The Lupus Foundation of America (LFA) is the oldest and largest national nonprofit voluntary health organization focused on improving the quality of life for people with lupus. Our unique dual mission serves the ongoing needs of people affected by lupus today while leading efforts to find a cure – from care to cure!  Through the national office in Washington, DC and a nationwide network of chapters, offices, support groups and community representatives, the LFA conducts programs of research, education, and advocacy.  The LFA is leading efforts to bring national attention and resources to bear upon lupus in order to shine a light on this medically underserved disease, accelerate the pace of medical research on lupus, build support for the needs of those affected by lupus, and elevate lupus to a place of prominence on the nation’s health care agenda.

NORD represents 1 in 10 Americans who have rare diseases with programs of advocacy, education, research and patients services. It serves as the voice of the rare disease community on important issues of public policy. It also provides information on rare diseases in understandable language for patients and their families, with referrals to support groups and other helpful resources. It encourages research on new diagnostics and treatments and administers patients assistance programs. NORD mentors rare disease support groups so that they can more effectively help their members. It serves as the point of connection between the patient community and key government agencies, such as the National Institutes of Health (NIH) and Food and Drug Administration (FDA). Nearly 150 patient organizations are members of NORD and look to NORD for guidance, mentoring and leadership.

ICRF was founded in 1975 by a group of American and Canadian medical researchers, oncologists, and lay people who were committed to the growth and development of Israel and to combating the worldwide scourge of cancer. These visionaries were determined to harness Israel's educational and scientific resources in the fight against cancer, while stemming the "brain drain" of Israel's best and brightest scientists. Their solution: providing funds for postdoctoral fellowships for young Israeli M.D's and Ph.D.'s. Their solution worked. In addition to ICRF's many achievements and medical breakthroughs by ICRF-supported scientists, the organization now has operating chapters in six cities in three countries - the United States, Canada and Israel -- with its international headquarters in New York City, plus active Boards of Directors for each chapter, an International Board of Trustees, and International Scientific Council, a Scientific Review Panel and a Scientific Advisory Board.