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Our mission is to find a effective treatments and ultimately a cure for fragile X syndrome, the most common inherited cause of autism. We directly fund research grants and fellowships at top universities around the world. FRAXA was founded in 1994 by three parents of children with fragile X. Fragile X Syndrome is the most common inherited cause of autism and intellectual disabilities. It affects 1 in 4000 boys and 1 in 6000 girls worldwide, and one in 260 women and 1 in 800 men are carriers. Treatments for fragile X are likely to help people affected by related disorders including autism, Alzheimers, and many other brain disorders.
At the Fanconi Cancer Foundation (FCF), we are committed to the advancement of FA research in an unwavering pursuit for better treatments, and ultimately a cure, for FA and FA-associated cancers. We offer support, education, and resources to families facing FA to help foster hope across the globe.
Mission MSA (formerly the Multiple System Atrophy Coalition) is a positive beacon of hope standing up to a little known, rare, insidious disorder. Mission MSA has a primary purpose of assisting researchers to find a cure. In the meantime, Mission MSA also provides much needed patient and caregiver support, educational resources, and advocacy to create awareness and to fight for issues important to the MSA community. F/K/A The Multiple System Atrophy Coalition
To provide the highest quality of emotional, physical, and spiritual support with compassion and respect. Their vision is a community that embraces specialized care at the end of life with the same importance that is given at the beginning of life.
The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research. High-quality research will lead to more effective treatments and an eventual cure for this disorder. By working together, we intend to free our loved ones from the burdens of PWS, allowing them to lead full and independent lives.
“Maanavseva" (Service to Humans) is a Registered Non-Profit with a mission to fight malignancies including breast cancer among rural women in Indian villages. The mission is achieved through activities such as educating, creating awareness, conducting preventive examinations and mammogram screenings and facilitating the hand-holding of rural women with necessary follow-up and treatment.Maanavseva intends to implement this mission by adopting one village at a time and conducting 100% screening of all village women as per the health guidelines and implement follow-up on a sustained basis. The short term focus is to create a successful process for a cluster of villages that is replicable and sustainable. Maanavseva will achieve this goal through conducting pilot studies in villages, identify, resolve and document the challenges involved and arrive at a workable and sustainable model. The long term focus is to expand the model to several clusters of villages through sponsorship of corporations, local bodies and other Governmental Schemes. Most prevalent cancers for rural women can be cured by early detection and appropriate treatment. If these cancers are detected early, the cost is less, treatment is less invasive, survival rates are higher and the quality of life is better. Therefore we believe that by creating awareness about these cancers and early detection through mammogram and other screenings is extremely important and is the only way to win the war on breast cancer.
The mission of Joslin Diabetes Center is to prevent, treat and cure diabetes. Our vision is a world free of diabetes and its complications.
Their mission is to provide care, support, advocacy, and education to people in Erie County impacted by serious illness and loss. Also known as Hospice & Palliative Care Buffalo.
To prevent the pain and trauma of burn injuries to children, and to heal, and to give children who suffered severe burns the opportunity to reach their full potential, physically, psychologically, and sociallly.
Families are at the heart of MDA's mission. We wake up every morning to create more hope and answers for families living with muscular dystrophy and related diseases that take away physical strength and mobility. We do this by finding research breakthroughs across diseases, caring for kids and adults from day one and empowering families with services and support in hometowns across America.
THE HOSPICE OF DAYTON, INC. IS COMMITTED TO MAKING QUALITY HOSPICE CARE AVAILABLE AND ACCESSIBLE TO TERMINALLY ILL PERSONS AND THEIR FAMILIES, REGARDLESS OF ABILITY TO PAY, AND IN A MANNER CONSISTENT WITH THE HIGHEST HOSPICE STANDARDS. OUR COMMITMENT TO THE HOSPICE PHILOSOPHY OF CARE INCLUDES A COMPASSIONATE STAFF PLEDGED TO CONTINUOUSLY IMPROVE AND ENHANCE THE CARE WE PROVIDE, RESPECT THE PATIENTS' CHOICES OF CARE, RESPOND TO CHANGING COMMUNITY NEEDS, AND SERVE AS A RESOURCE TO OTHERS FOR IMPROVING THE AVAILABILITY OF QUALITY HOSPICE CARE.
Parkinson Society Canada is a not for profit, national charitable organization. The Society raises money through corporate sponsorships,public donations, and planned gifts. Finding the cause and cure for Parkinson's disease remains our chief mission. However, while we wait for answers, we must not forget the patients and caregivers. New publications, increased patient conferences, clinical assistance programs, as well as other projects also require your support and funding. While we have come a long way towards raising Parkinson's disease in the consciousness of Canadians, we have more to do.