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Our mission is to find a effective treatments and ultimately a cure for fragile X syndrome, the most common inherited cause of autism. We directly fund research grants and fellowships at top universities around the world. FRAXA was founded in 1994 by three parents of children with fragile X. Fragile X Syndrome is the most common inherited cause of autism and intellectual disabilities. It affects 1 in 4000 boys and 1 in 6000 girls worldwide, and one in 260 women and 1 in 800 men are carriers. Treatments for fragile X are likely to help people affected by related disorders including autism, Alzheimers, and many other brain disorders.
Brain Support Network (BSN) is a non-profit, charitable organization dedicated to three missions: 1) Providing information and support for anyone living with an atypical parkinsonism disorder (Progressive supranuclear palsy, Dementia with Lewy bodies, Multiple System Atrophy or Corticobasal degeneration) anywhere in the world; 2) Providing a support for care partners of those living with an atypical parkinsonism disorder in the San Francisco Bay Area; 3) Enabling families living anywhere in the US to donate the brain of anyone with any neurological condition (or healthy controls) to confirm the diagnosis and to further neurological research into causes, treatment options and cures.
Every Mother Counts is a non-profit organization dedicated to making pregnancy and childbirth safe for every mother. They inform, engage, and mobilize new audiences to take actions and raise funds that support maternal health programs around the world.
Hospice of Michigan's mission is to ensure quality of life and a comfortable, peaceful death for all patients receiving our care, and provide support for their loved ones. We will serve everyone in our communities who needs and seeks our care and strive to improve the state of end-of-life care.
To provide sport and physical activity opportunities for individuals who are blind or visually impaired to promote their lifelong wellness.
We are honored to provide resources and support to the millions of people living with Alzheimer's disease and to their families, friends and caregivers who support them on a daily basis. If you or someone in your family has been diagnosed with Alzheimer's disease or another form of dementia, we are here to help. You can get free, confidential counseling and support today. The End Alz Association is proud to be a leader in the fight to #EndAlz but we couldn't do it without your support. Please join us and make a donation today. Together, we can #EndAlz!
Prime of life neurodegeneration is a spectrum of relatively rare diseases that often afflict people during productive, active years and lead to debilitating symptoms and early death. They are generally categorized as frontotemporal disorders and are characterized by progressive personality, behavior, language and motor decline. These diseases create a level of functional impairment that significantly compromises the ability to carry out activities of daily living. There is currently no treatment and no cure, but there is hope. Research into these diseases may be a gateway to understanding and ultimately preventing, treating and curing more common neurodegenerative diseases like Alzheimer's and Parkinson's. CurePSP is the leading organization within this disease spectrum, providing support for patients, families and caregivers; awareness and education to healthcare professionals; and global research funding. Current research into prime of life diseases, especially progressive supranuclear palsy (PSP), is showing great promise for unlocking the secrets of neurodegeneration.
The Seeing Eye is a philanthropic organization whose mission is to enhance the independence, dignity and self-confidence of blind people through the use of Seeing Eye dogs.
Their mission is to promote early detection of brain aneurysms by providing knowledge and raising awareness of the signs, symptoms and risk factors. Work with the medical communities to provide support networks for patients and families, as well as to further research that will improve patient outcomes and save lives.
In the fight for a DIPG/DMG cure, we help patients and families by funding game-changing research and providing navigation throughout their journey.
Guiding Eyes for the Blind--Provides guide dogs for the blind
RSRT was launched in 2008 to drive research toward a cure for Rett Syndrome and related MECP2 disorders. Our mission is urgent: 15,000 girls and women in the United States and 350,000 globally live with the agonizing symptoms of Rett Syndrome.